Wednesday, 3 December 2014

Part 31 - November 2014


Willow sculptures

I started November with the same catalogue of woes.  I stayed in bed all weekend, debilitated with post-viral fatigue and IBS.   On the Sunday, I tried not to get too down about missing the sunny weather again. My partner also seemed a bit down but I coaxed him to go out for some air.  He brought me five packs of sweets back! 
The IBS persisted for several days.   I found some anti-inflammatory pain relief pills that I got from hospital ages ago; these helped slightly.    I knew the main issue was a blockage where the large and small intestines met.  My partner helped me with a massage and I expelled lots of gas which did ameliorate the symptoms somewhat and made him laugh!
Although I had resolved to stay in bed for as long as it took, it proved a tedious week.  Improvements were slow and short-lived. 
 It took me three mornings to edit ‘Memoirs’ for October.  I had promised myself to not do too much in one go and stopped when I started to get tired again. 
The last chapter of ‘mindfulness’ involved three meditations - the ‘body scan’, the ‘breathing anchor’ and the ‘three minute’ meditation - and writing a letter to myself (which I considered stupid). 
I finished a crime book by a well-known and respected author that I had hoped might give me a clue to success.  Alas, it was full of plot holes and the writing was sloppy.  I resolved never to read one again.  On the plus side, it made me feel better about my own writing style. 
On Saturday I tried sitting up in the living room but had to go back to bed after an hour.  I watched sentimental films on telly and cried – already depressed, the schmaltz set me off.  I tried to distract myself by working on some jewellery with mediocre results.
That night, my sleep was disturbed and unrestful.   I felt absolutely terrible on Sunday.  My partner asked: “what have I done?”  I explained it wasn’t him; I had hardly slept and felt worse.  He asked me did I want to go for a walk.  I was incredulous: “are you for real?  I can hardly get out of bed with fatigue, I feel depressed, I don’t want to see anyone.  I thought you understood”.   He said he did and I knew he was trying to help.  But him suggesting a walk when it was impossible for me made me feel worse. 
I cheered up momentarily at the John Lewis penguin Christmas ad mash-ups.  Then I had a slump later on, falling deeper into depression.  I was so fatigued I could not keep my head up.   Unable to sleep, I lay in a stupor before bursting into tears – I just couldn’t help it.  My partner came to try and comfort me.  In the evening I felt so worn out that I was sure I would sleep.  But just as I was dropping off, people shouting outside woke me and I had another fitful night.
On Monday I still felt very low and tired.  My partner tried to get me to talk about what I wanted for Christmas.   I was normally enthusiastic about Christmas and but I couldn’t be bothered to even think about it.  I got worried about sinking deeper into depression and despair. Having tried everything else and being at the end of my tether, I almost rang the GPs for antidepressants.
Christmas Cactus
But then I had a much better night and re-considered.  I started taking St Jon’s Wort  and stuck to a healthier eating plan which I felt had started to pay off with improved sleep and generally feeling better.  Things seemed to be looking up a bit.  I came up with an ending to my children’s story and practiced some sketches in Photoshop and talked to my partner about some ideas for illustrations.  I also managed small spells out of bed and even a bit of light housework and Christmas planning. 
Cyclamen
I took photos of house plants with flowers including a Christmas cactus which I had moved into the bedroom so I could look at the blooms and a cyclamen and added some to a Christmas card design.
Because I was still low on energy I tended to only get up to do things that were absolutely necessary.  I needed more fun.   I played guitar for the first time in weeks and revised all the chords and a few of the songs I had learned.
Thursday, I went to aromatherapy.  After a tricky start due to being in a teeny room and her freezing cold hands, it was pleasant and she put some nice cream on my face.  I then popped in the bead shop and helped untangle some Christmas lights and bought a few bits.  When I got home, I was knackered and went back up to bed.
Mid-week, the central heating started playing up.   My partner reckoned he got it working but it kept going off so I went on the BG website and tried the trouble-shooter.  I got pissed off doing their job for them and booked an engineer for the Friday morning.  Despite my fatigue and depression, I made an effort to get dressed and waited up for them.  My partner thought I was getting irritated with him, but I said it was the same stuff and I got a bit upset and he comforted me.
I kept sneezing but had no other outward symptoms so thought it might just be the cold house.  Saturday morning I made an effort to get up and dressed again.  We went out together for the weekly shop.  When we got back, I felt viral (the sneezing from the day before must have been an omen).   I tried to ignore it, but I got progressively worse as the evening wore on; obviously it was a mistake to have a whole day out of bed.
On Sunday we both felt rubbish. I suggested he had brought germs home from Leeds seeing as I had hardly been out of the house.  He responded that maybe it was the gas man but I swore that I didn’t go anywhere near him!
I spent all day in bed.  My partner went out to the Sunday market and kept us fed and watered.  That night, I had terrible hot flushes and sweated like mad every time I woke up.  I got some decent sleep in-between and lay in bed late on the Monday morning.  I felt a bit better having sweated a lot of the fever out but realised I had sinusitis and rang the doctors to get antibiotics.  I was prescribed double-dose erythromycin (for the third time in a year which was a cause for concern). 
By the time I mustered enough energy to go out for them, it was 1 o’clock and there was no dispenser at the chemist near the surgery so I started making my way round to the other one.  On the way I saw my friend with the interesting ailments.  We caught up on each other’s ailments – her hand was better and she planned to return to work on Friday but had an ear infection. 
That night, I had bad tummy ache and realised I should have bought pre-biotics as the antibiotics would be killing all my friendly bacteria.  I experienced bad hot flushes too and the next morning I felt dreadful again and my stomach was very uncomfortable.  My partner went to get me some pre-biotics before going to work.  I then developed chest pains.  I didn’t know if the infection had spread or if it was caused by gas from my stomach.
Mid-week, I received a phone call with some shocking news which I am unable to write about here.  I was very distressed and struggled to sleep for the rest of the week.
Despite still feeling ill, I kept occupied with everyday tasks and immersed myself in escapism when I was too tired to be active.   I did some writing but came up with nothing publishable.
Saturday morning, I was woken from four hours of restless sleep by stupid workmen in the shed behind the house at 8.15 a.m.!  I felt I couldn’t cope.  I cried while my partner tried to comfort me. I told him I was heart-broken and couldn’t deal with any of it.  Of course he thought I was being unreasonable complaining about the workmen but I didn’t think so.  It annoyed me that they turned up in a residential area at random times and made loads of noise.  Power tools were the worst, but was there any need to also whistle, play the radio and shout at each other?  

Willow sculpture
I was determined not to mope and dwell on the bad news.  I soaked fruit for Christmas cake and helped my partner to pickle onions and shallots.   

On Sunday I managed to get out of the house.  We went into town, taking photos of willow sculptures and laughed at a new off license for people too posh to go in off licenses. 




Posh off-license
On Monday morning, I tried to sleep in but failed. I rang the doctors to say I didn’t think my sinusitis had gone and also that I was even more depressed. I explained to the receptionist that I needed to see someone not just have a phone call.  She replied in an abrupt tone that I would have to speak to the doctor and I said fine, but would she pass the request on.  She repeated herself three times and I shouted at her that she could be more understanding when people were in distress.  The duty doctor rang me back and I explained my two issues and he booked me in for the afternoon. 


Creeping Charlie
In the meantime I sorted out my winter clothes and rediscovered a lovely fluffy hoodie that I had forgotten about.  I also worked on my draft blog and sorted through some photos.  I posted one of mystery white flowers that had appeared on a houseplant I had owned for years to see if anyone knew what it was – my friend with the interesting ailments replied that it was a Creeping Charlie.

I saw a new African doctor who launched straight in with “how long have you had the sinusitis” and “what are the symptoms?”  He prescribed two nasal sprays which I suspected (rightly) would be cheaper to buy over the counter.  

I then said I needed to talk about something else and he replied “sorry, this is an emergency appointment”.  I said I had explained to the duty doctor that I had two emergencies and he insisted that I would need to make another appointment. 
I totally lost it and screamed: “You’re all useless!  All you can do is dish out sticking plasters!”  I stormed out, slammed the door and went over to the pharmacy.  As I stood waiting at the counter, I was shaking and trying not to burst into tears.  The chemist spent ages checking prices and in the meantime, the doctor rang me and started with “I don’t appreciate...”
I was gobsmacked.  He should have been asking me if I was alright.  I shouted at him that I was in crisis and he had not given me a chance to talk about it.  After a heated exchange (on my part at any rate) he said we obviously got off on the wrong foot and to go back to see him.
I gave him an update on my depression and the recent trauma I had experienced.  I said I wanted proper psychotherapy but couldn’t get it.  He asked “why not?”  I said “because it’s not funded in this area on the NHS.”  He brought up the IAPT leaflet on screen and nodded: “oh, I see”.  He asked me why I didn’t want antidepressants and I outlined my objections. He explained about a particular SSRI and gave me a print-out to take away and read. 
Needless to say, I was exhausted when I got home.  I went back to bed and did some thinking.  I decided to ring my art pal as I had never asked her how antidepressants had helped her.  We had a brief chat and arranged to meet the next evening.  When my partner got home he asked me about the doctors.  He said it sounded a bit more informative than previous GP visits.
I resolved to make an effort in the mornings, even if I had to go back to bed in the afternoons.    I spent all Tuesday morning cleaning the kitchen – the sun streamed in, showing up all the grease and dust.
In the afternoon I attempted to research psychotherapy in the local area.  It was a minefield.  I found one that I liked the sound of and sent a query.  I got a reply to say that there were no spaces.
That evening I met my art pal for a couple of drinks and a chat.  I told her all my woes and she told me about her experience of antidepressants – she was still taking them but planned to stop soon.  She said she felt lots better but was not sure if that was down to drugs, or the really good counselling she was getting through work, or doing stuff like art.  We also talked about her recent dating exploits.  It was so nice to get out and have someone else to talk to. 
That night I felt very sleepy, which I put down to drinking two pints – the first beer I’d had for six weeks.  I Fell asleep quickly and only woke twice during the night.  Thankfully, this pattern continued for the rest of week enabling me to continue to be productive at least some of the time.
Wednesday morning I was sneezy and snuffly again.  I said to my partner that I hoped I wasn’t having another relapse.  He asked how I was apart from that.  I shrugged and said I was just trying to keep busy and not dwell on bad stuff.  I also told him that talking to my art pal had been helpful and I that might get the antidepressants then decide if/when to take them.
I was determined to go on a mission to the big town.  I took flu plus to keep the snuffles at bay and headed out for the train station.  My partner sad he’d walk out with me but was not quite ready so I left him to catch up as I needed to buy a ticket.  I thought I had a couple of minutes to spare when the train pulled in.  My partner appeared and ran through the ticket hall straight onto it.  I checked with the conductor that it was the correct route before jumping on myself. 
I went to the bank to put in my tax rebate (my Christmas fund) and then to the usual boring shops.  As these forays made me very tired and hungry, I thought I might try eating lunch before returning home but was thwarted.  I tried a small coffee shop.  They had no free tables so I ate a banana I had with me instead.  I then noticed some sort of food stall at the entrance to the covered arcade.  I went over and stood there a good five minutes but no one came to serve me.  I gave up and got the train back, buying a pasty on the way home instead.
In the evening I rang mum.  My younger brother was visiting and told me she was fine.  When I spoke to mum, she insisted that she was okay but of course she was in denial about her own mental health issues.  I briefly filled her in on my situation without the angsty bits.  She said I didn’t get out enough and I said she should practice what she preached!  She suggested I get a ‘little job’.  I had to remind her again that I was in no fit state to work, mentally or physically. 
Afterwards, I was exhausted and could hardly keep my head up.  I had probably overdone things.  Nevertheless, it took a while to settle that night.  I had jumbled thoughts in my head and struggled to calm my mind down.  In the morning we laughed at crap ‘magical Leeds' - everywhere seemed to have to have a crap Christmas land now, hilarious!
On Thursday afternoon I went to aromatherapy.  She did a bit more work on my facial area and talked about using eucalyptus to help my sinuses.  She said my shoulders seemed a lot better and I replied that must be down to her with no other reason why there should be improvement. 
By Friday, my physical symptoms had abated although I still felt very tired and crap.  I kept busy with some shopping and making jewellery in-between resting and contemplating the dull, grey, damp weather that had persisted for days.  Saturday was the same.  I baked the Christmas cake and was very pleased with the result.  My partner cut and dyed my hair before doing his own.

Arty gig photo
Sunday morning started out bright and I suggested a short walk.  I had to wait ages for my partner to get ready by which time the best of the sun had gone, but we ventured forth anyway.  We went for a pub lunch followed by a benefit gig at the local club featuring our mates’ band.  We caught up with a lot of people and were amused by the dancing antics of hippies.  There was also some rap poetry courtesy of another friend and a couple of his mates.  I took some photos, which came out badly but I decided one was quite arty.  

One of our friends said that she would like to have a proper catch up over Christmas which would be nice. 
It really cheered me up to go out and see lots of friendly faces.  Inevitably, I was very tired and hoped to get to sleep quickly, but I tossed and turned again with all sorts going through my head.  When I did drop off, I drifted in and out of sleep and lay there unsure if I was asleep or awake at times. 
So, I ended the month on a positive note despite a return to the usual sleeping pattern.  I thought that my physical ailments had gone; or had they?...

Wednesday, 5 November 2014

Part 30 - October 2014


Looking down the valley

During October, I pondered on the fact that since the start of my illness, I often couldn’t remember what I did between 2 and 3 o’clock in the afternoon.  My partner said it was because of the ‘circadian biological clock’ (lowest energy point) but I still thought it weird.   Another side-effect I noticed was being clumsy after a few drinks, even when I didn’t feel drunk.  The brain really is a strange thing!
At the start of the month, my joy at discovering that aromatherapy seemed to work was short-lived.  Despite dropping off during mediation, when I turned over to sleep I would be plagued by the familiar barrage of random crap going through my head and raging hot flushes.  That being said, on 1st October, I still felt comparatively rested.  I spent the morning refining and posting my blog for September and added a link to ‘Kos ‘anecdotes’.  At lunchtime, I had a dentist appointment in the next village and planned to go straight onto the big town.  I needed to go to the bank and get some essentials.
I felt anxious during the journey.  The bus crawled along on approach into the next village - due to someone falling in the road apparently.  The dentist was running late and it took half an hour instead of ten minutes.  I filled the waiting time with breathing exercises.  I saw a new, young dentist who seemed nice.  However, when cleaning my teeth, he kept telling me to relax my lip even though I was concentrating on my breathing to relax and he had hold of my lip so how was I supposed to loosen it? 
Afterwards, I felt very strange and light-headed.  I contemplated going home but a bus stood waiting at the stop so I got on it.  I still felt weird when I got to the big town.  I walked around to clear my head and had a ‘comfort break’ in the department store before embarking on my errands.
I got annoyed when buying light bulbs.  It took ages to find the right ones as the packaging had changed and they had doubled in price.  It was all a ploy to steer you towards the more expensive low energy options.  An elderly Asian couple shared my struggle.  Holding newly-purchased lamps, they searched for the bulbs to match.  The man said to me: “you wouldn’t think it would be so hard to buy bloody light bulbs would you?”  Touché! 
The bus home was absolutely packed – mainly with loud and smelly high school kids.  A nice girl sat next to me at first but when she got off, a huge young man took her place.  He was so large that he practically sat on top of me!  I became very squashed and hot.  The bus crawled along and I thought, ‘My god!  Will this bus journey never end?’  I got off early and decided I was never doing that again. I had thought it would be economical combining errands but it became such a ghastly experience.  I was exhausted!
That night, it was an effort to sleep even though I was knackered and the fatigue continued into the next day.  I managed to go to the market and complete some chores with small rests in between.  It was a lovely day and I should have spent more time out in the sun.  But I felt too depressed as a result of the previous day’s traumas followed by a rubbish night.  I played guitar to cheer myself up.  I worked on stretching my fingers and quicker chord changes and added another song (‘Mr Tambourine Man’) to my repertoire.  I still struggled with the G chord but it sounded right occasionally.
That night I took Temazepam for the first time in three weeks and fell asleep quickly.  I didn’t wake until 7 a.m.  On Friday morning, I lay dozing, smiling to myself because I’d had a decent sleep for the first time in ages.  Then I dropped off again for another hour. 
My friend with the interesting ailments came round.  Her arm was still not right and she had trouble changing the dressing on her toe.  She had tests done on her eye and while awaiting the results had been prescribed some drops which made her feel awful and tired.  I said it might be one of the active ingredients and she should check.

Writer's house - Looking out
Despite my extreme fatigue, the sunny weekend weather tempted us out of the house.  On the Saturday, we walked up the valley side to visit an open day as part of ‘fun palaces’.
Writer's desk

This took place at a house once occupied by a famous local poet and had since become a posh writing school.


Thus most attendees were literati.  There might even have been some well-known people present; they all looked the same to me.  We had a nosey round the house and gardens, enjoying the views looking back down the valley.

On Sunday we walked along the canal to the hippie boats.  There was evidence of new cultivation and built structures; including a shed that looked like a pixie house.

Pixie house
From there, we crossed the road and proceeded up a small valley, following a path up on the left side of the stream.  We spied several old broken down buildings amongst pretty trees and waterfalls, and came to what looked like the remains of a mill next to a bridge over the stream.  We crossed the bridge and ascended a steep paved path.  We then veered off to a smaller path to follow the line of the stream again, albeit much higher up.

  

I realised I had dropped my camera somewhere.  Retracing our steps back down to the bridge, I found it lying on the ground and then we had to do the climb again!

Old broken down building
My partner was a bit out of sorts.  He had complained f being cold earlier even though it was not, then he became overheated and out of breath.  We proceeded slowly until he recovered.  I picked a few berries and we tried to find somewhere to sit and rest awhile.  We sat on a small wall when he noticed some dog mess so we moved and had to stand around on the edge of the path to eat the berries and drink water.  A bit further up, there were more forks in the path and I spotted one going down to a small bridge we had visited a number of times. 


Mini moor
We saw an old friend with a group of walkers.  She told us she had lost her teaching job when the school she worked at became an academy - yet another victim of public and voluntary sector hell!   I briefly updated her on my situation.  We continued to a flat rock which was a lot more overgrown than we remembered (like a mini moor) for a picnic.  After that, we walked back down and tried to identify some animal droppings (I found out later they belonged to deers).   


Kinky bridge
The last part of the walk involved a very steep descent, making our toes very sore, which we briefly forgot at spotting a kinky sign under a bridge.  We caught the bus back to town and had a drink at the pub on the corner before going home.  I then realised that the sole on my boots had come apart.

That night, I could hardly keep my eyes open and went to bed early.  Despite dropping off during meditation, when I turned over I couldn’t get to sleep again!  I tried to focus on my breathing but failed to stop my mind from churning.  I tried to practice what the ‘mindfulness’ course suggested  – letting my thoughts come and go without getting caught up in them.  Eventually I did sleep on and off.  The next morning it was so dark.  The weather had turned truly awful and I remarked on how lucky we had been at the weekend.
I worked on getting my blogs out to a wider audience.   I received a request on LinkedIn from a blogger in India which led me to join a writers’ group. I started a new blog on Wordpress called ‘Cool Places – words and pictures from the South Pennines and beyond’.  I added three new posts straight off.  I also set up an account on IFTTT (if this, then that, which automatically sends your blogs to social media when you post something), updated my social network accounts and started uploading a backlog of photos which prompted a few ‘likes’.
As it was Mental Health Awareness Week, I looked for Mental Health blogs I might be able to link to.  In truth, I became sick of the sight of posh people and footballers banging on about stress and depression and wanted to redress the balance but found no easy way to do it. 
Week 4 of ‘mindfulness’ involved a ‘compassionate’ meditation and analysing the diary sheets from week 3.  On Monday I got a headache from working on my writing followed by reading the actual textbook so didn’t have the brain power.  When I got round to it the next day, it took me ages – 20 minutes my arse!  As expected, I made no startling revelations but noted small changes I could make to manage my fatigue. 
My Mum rang and I tried to convince her that ‘mindfulness’ was worth a go.  Of course she had lots of resistance claiming she couldn’t meditate because she ‘couldn’t stop thinking’.  I told her that wasn’t the point.  In the end we agreed I would bring the book when I next visited. 
I called on my art neighbour who was quite stressed.  Their house move had been delayed due to a dispute over who owned the garden.  She had also started a counselling course and was trying to manage her ill parents.  I shared the wisdom of my experience of dealing with elderly parents: there was only so much you could do before accepting help from the professionals.
I endured three night’s running of truly awful sleep despite meditating, breathing exercises and other relaxation tricks.  I tried to implement the philosophy of the mediation practice - being kind and patient with myself and not give up.  Wednesday night I gave up on all that in favour of Temazepam and slept through to 6.30.a.m. Then the boiler woke me.  I dozed another couple of hours before struggling to get out of bed.   I felt really groggy. 
Thursday night I was back at square one.  As I tossed and turned, my thoughts turned to the current Ebola outbreak and how ineffectual (and possibly counter-productive) the response from officials had been and concluded that we will probably all die from it (have they not seen WWZ?)
Friday morning I felt really awful but managed to drag myself up to have a bath.  In the afternoon, my friend with the interesting ailments visited me.  Her hand was a lot better – she had a lot more movement and less pain, but her toe was still manky and her eye problems remained.
On the creative arts front, I made birthday cards.  My partner had made a print of one of his photos as a present for my art friend.   I wrapped it in my handmade paper, decorated with hydrangea flowers (picked from the garden).  I was rather proud of my resourcefulness.
On the guitar, I learned three minor chords and the C chord.  I added a few more songs to my repertoire including ‘natural mystic’– I really enjoyed that reggae strumming - and ‘You Can’t Always Get What You Want’ which made me realise those fancy intro parts weren’t always as complicated as they sound.  I could stretch my fingers a bit more although C and G were sometimes still jangly.
On Friday night, my partner was home earlier than normal and cooked mussels and chips for dinner.  We stayed up late drinking wine and watching films.  Consequently, I was still tired on Saturday.   In the evening we had arranged to meet our art friend and some other people for her 50th Birthday.  We met at the Wine bar and she appreciated the crafty effort that had gone into her gifts.  We got acquainted with another friend of hers.  She and me ordered the same meal but hers was miles bigger than mine!  (As a good friend of the owners, she got special favours.  She gave me a bit of hers to make up which was nice).  After eating, we went onto the pub round the corner.  At the end of the night, we saw my art friend into a taxi.  By then, it had gone very foggy which was kinda cool. 
Small clough
Sunday we were tired and hungover but keen to go out. It was still foggy early before brightening up.  We walked up to the woods opposite and followed a small path right up to the top and along the ridge, then carried on up the lane before veering off onto a footpath to a small clough.  It turned out to be a very steep climb up (weird clough if you ask me!)   I got very tired and dehydrated and had to stop for refreshments before continuing.  We came back out onto a different lane and turned left towards the next village.   

Woods via dodgy path

We then spotted a causeway leading down and thought it would be okay to follow it but it got very marshy and tussocky so we turned back.  By this time I was really tired.  We retraced our steps back along the lane, then down a very dodgy path through the woods. We came back onto the road to be amused yet again by a sign – albeit this time due to augmentation.



Augmented sign
When we got home, our legs ached from climbing and navigating tricky bits.  At bedtime I ran a radox bath.  I could barely keep my eyes open and fell asleep fast.  I slept six hours straight then dozed for another two hours. The best sleep I’d had without drugs for a month!  Nevertheless, I was still fatigued and achy from walking.

I spent Monday working on my draft blog and read the next chapter of ‘mindfulness’ which involved a ‘treasure of pleasure’ meditation, and writing down ‘ten good things’ at the end of each day.

I was sceptical about the helpfulness of this: despite my depression, I had not lost pleasure in life per se, although I got fed up not being able to do all the stuff I wanted despite my valiant efforts.   But I thought the advice on ‘pacing’ and not being too hard on myself for not doing enough, might help. 

Steve Harley and band
In the evening I met my walking friend at the pub on the corner.  She was sat outside with a pint and I remarked that the not drinking hadn’t lasted long!  She said it was a one-off for our special night out.  We went over to the local club and ensconced ourselves in a corner near the bar to await the arrival of my partner and Steve Harley.  They both appeared at the same time. At the start of the gig, I watched Steve’s fingers (as I always did since learning to play guitar) and realised I knew all the chords he was playing!  They played for two and a quarter hours, a mix of new and old material, but chatted far too much in-between songs.  

Steve Harley in solo mode
My walking friend went home early saying she had heartburn.  She said “if he does Sebastian, clap for me”. Of course he didn’t.  My partner joked that the orchestra were hiding behind the curtain – ha! Ha!  

After the gig, a woman we knew from ancient pub days came and chatted to us.  She had been in rehab, saved loads of money, and was now apparently spending it all on drink!  She had got SH to sign an album for her and kept going on about how gorgeous he was.  We escaped to the bar where she followed us.  We drank up and ran away.


I was of course tired the next day but managed to carry on with my normal activities.  I finished making a birthday card for mum and went out to post it.  In the afternoon, following yoga and meditation, I fell asleep for an hour.  Feeling refreshed, I practiced guitar – I revised the chords I’d learned and tried another song.  Cheekily, this added a B7 chord which set me off wondering what the actual notes were.  Obviously I knew the basic notes of the strings but what made a sharp for example, and what does the 7 mean?  I also looked for Steve Harley song sheets but concluded you had to beg in a sycophantic manner on the fan site to get them.  Bugger that, I thought!

Crap on stall roof
The following day I went to the next town and visited Posh Nosh in the market hall.  I chatted to the stallholders who used to have a regular pitch at our local ‘farmers market (sic) about how it had gone downhill of late.  I noticed a sign pointing up some stairs for a ‘pop up gallery’.  I went to investigate.   There was no such thing but I discovered a treasure trove of wrecked and abandoned paraphernalia and got fantastic views of crap on stall roofs.
 
Abandoned paraphernalia 1
In the afternoon I wrote a post for my ‘Cool Places’ blog.  I realised I was getting a bit addicted to this blogging and spamming lark but did not think that a bad thing. I felt good about linking my writing to photos more and someone had re-pinned one of my tree prints on Pinterest.  Later in the week, I wrote ‘tales from the co-op number 7’ and tidied up ‘notes on life the universe’ on Blogging.com.

I had a strange night, dropping in and out of sleep in small bits.  The next day I felt unrested and my partner was feeling unwell.  He said he had a headache and I said I had one most days and he snapped back “oh really”.  I didn’t say anymore as I didn’t want to argue.  We sat quietly and later he said sorry. 

Abandoned paraphernalia 2
Workmen in the shed behind our house started making awful loud noises from 9.00 a.m. and carried on until almost 6.00 p.m. which did my head in.  I tried to pluck up courage to have a word and see if there was anything that could be done to lessen the disturbance but felt unable to do so without getting angry or upset.   

My partner said he would find out on his way to work.  He did, but didn’t tell me until he got home in the evening.  In the intervening period, I had tried everything to ignore/block out the noise to no avail.
In the afternoon I had my second aromatherapy session.  Again, it was nice despite the pain when she was getting the knots out of my shoulders which I bore without complaint.  After, she said my shoulders seemed okay but she could tell a lot was going on in my head. She said I was obviously someone that liked to think a lot and it must be hard to stop.  I said that wasn’t the whole story and related some of my experiences of having tried everything to calm my mind down (and reflected again that no-one seemed to get it).
When I got home I attempted meditation.  It was impossible with the racket of drilling outside.   I was so tired and frustrated I cried a bit and knew I wouldn’t sleep but was too knackered to get up.  I put rainforest sounds on the DAB radio and lay listening to it until it became quieter outside.  Then I tried to sleep once more but the noise started up again!
That evening, I rang my mum for her birthday.  Her stream-of-consciousness conversation made me even more frustrated and tired so I cut it short.  My partner asked me if it was a hard call.  I said I didn’t want to talk about it.  He helped me prepare dinner and I apologised for being so crap and no fun.  He told me not to worry, he was doing art (as usual).
On Friday I was crossing the road to the local supermarket.  I rushed a bit too much to beat a van coming round the corner and managed to hurt a muscle in my left hip.  I cursed my own stupidity after the aromatherapy the day before.  The pain plagued me all day.

Wrecked river sculpture
In the afternoon I walked into town and noticed that the ducks had wrecked the river sculpture.  I met my friend with the interesting ailments at a cafe in the square.  There was some improvement in her various ailments although her eye problem remained a mystery.  The doctors said it might be hayfever which of course was rubbish. 


First Bus - "You know nowt"
We had a wander round and spotted a ‘First Bus’ promo featuring a smart bus as seen in London.  A woman was shouting at them that they knew “nowt about round here” because they were from Lancashire.  Hilarious!   

I saw another friend on the way back; he had lost his bar job due to an accusation of theft and would be homeless in a week.  It sounded like the same shitty crap I went through (again!)  He said he planned to go to ACAS followed by tribunal if necessary.   I didn’t say anything but bitter experience had taught me that the employer usually wins.  

When I got home I was exhausted.  I decided the ‘treasure pleasure’ meditation was a waste of time and did the ‘compassion’ one instead to try and ease my aches, pains and extreme fatigue.

Over the weekend, I felt as if I was coming down with a virus.  We stayed in on Saturday, cooking, baking and crafting.   On Sunday, we both felt tired and crap but needed to get some air.  As I was getting ready to go out, I had a bit of a fit at the state of the floors.   Leaves and twigs had been trodden right through the house.  I told my partner not to wear clumpy boots inside and he started to argue that he didn’t know they were wet – that was not the point!  

Old road and buildings
This put me in a bad mood which dispersed as we set off on a walk.  I suggested going up to the woods above the playing fields.  We spent some time considering the old road and buildings and imagining what it was like as a village in days gone by.  We then carried on up through the woods until we came upon a ring of stones where we paused until it started raining.  


Stone in the woods
We headed downwards and came onto the riverside path.  We marvelled at the changing water flow.  After a dry summer, recent rain had brought more trees down and the river appeared to have shifted to the north with a new waterfall forming.  


We went for pizza at the Italian cafe before strolling through town and looked in a skip behind a short-lived Italian restaurant.  We found some old Perspex shelves and a plastic cutting board destined for crafting purposes.  

By Monday I did not feel well at all and this was to dominate my experience for the rest of the month.  I spent most of the time in bed, keeping occupied by working on my various blogs.   I worked on drafting ‘memoirs’ and wrote three entries for ‘Cool Places’ i.  I found an old file in which I had written some blurb about walking.  I used this to do an ‘about’ page then split the blog into two, with one focused on local places and the other on locations further afield.  I spent ages getting them to look how I wanted.
Simultaneously, I sorted through photos to upload and choose some for blogs. Too much of this sort of activity made my head hurt so I tried to limit myself to two hours writing in the mornings and made sure I had some proper rest in the afternoons. 
The next chapter of ‘mindfulness’ involved an ‘open heart’ mediation.  Strangely, the first time I practiced it I had a weird EHS ii episode and figured it was sending me to sleep.  But when I tried to sleep I couldn’t.
I still struggled to get to sleep most nights despite not being able to keep my eyes open and feeling very weary.  I had the same old rigmarole of trying to sleep, then needing to get up again and trying to think things through but not coming to any fantastic conclusions other than I needed to keep trying.  I thought about how much this sort of ‘viral’ illness was directly related to my mental health.  Was there a direct correlation between the depression/fatigue/lack of sleep and getting physically ill to a point where I became bedridden?
I tackled my insomnia with the usual tricks of breathing, relaxation, concentrating on nice feelings and listening to the river.  I also invented a new game.  This involved counting the gap between cars going past on the night-time road below before I eventually dropped off in the early hours.
I had two more episodes of EHS: the first time was like a stack of cardboard boxes toppling over.  The second time sounded like several alarms on mobile phones going off at the same time.
I heard the back end of Hurricane Domingo arriving early on Tuesday.  Although it calmed down mid-morning, it kept coming back with spectacular force at times.  I did not expect the leaves on the trees to last much longer but reflected that at least we had been on lots of woods walks before I became bedridden.  Maybe it had worn me out.  But as I had said before, I preferred doing stuff then feeling knackered to not do anything.  On the plus side, the rain put the noisy workmen off!
By Wednesday I could manage short spells out of bed although I became fatigued quickly and had to take it easy.  I was in the kitchen when there was a loud knock at the door.  I guessed it was the postie.  By the time I got to the door, he had gone but had put loads of stuff through and I wondered why he had knocked.  Then he knocked again.  I tried to tell him he needed to give people more than two minutes to answer the door and he started arguing with me.   I got annoyed, grabbed a parcel off him and told him I was the customer.  That was the second time I had argued with that middle class tosser. It put me in a really bad mood and wore me out so I went back to bed. 
My partner was very late home.  I asked him why but he had no answer.  He’d also had a Performance Review and when I asked about it he just said it was ‘boring’.  Instead, we chatted about Christmas.  For once he agreed with me that we did not need expensive gadgets and not to spend too much money on presents.   

That night, I took Temazepam and slept four hours in one go.  I Felt a lot better  the next morning but my fatigue returned quickly when I got up to do a bit of cleaning and washing.  

We were bemused by India Knight having written a book about how to be a woman over 50 (stupid Guardian bossy woman!)  I put a comment on twitter with amusing results. iii

Over the weekend, I thought I was improving, but slowly.  I still spent most of the time in bed, getting up for meals and to watch films.  My partner went to the shops for essentials and helped me keep fed and watered.   

When the clocks went back on Sunday morning, I tried to get the benefit of the extra hour but after a restless night, I gave up at 8.20.   I got dressed for the first time in a week but still only managed a few hours out of bed.  At night-time, my partner made us hot chocolate.  This seemed to help at first.  I fell asleep soon after 12, then awoke thinking I‘d been asleep hours but it was only 1.40!  After that, I slept intermittently, plagued with hot flushes. 
At the start of the last week in October, I still felt ill and stayed in bed.  I kept up with the ‘mindfulness’ course.  Week seven entailed the ‘open heart’ meditation and two new ones: ‘connection’ and a ‘three minute breathing space’ which I was meant to do three times a day; I struggled to remember all of three every day. 
I used some of my time to design a couple more birthday cards, finish a backlog of photo uploads and write two articles for my ‘Cool Places 2’ blog.  While writing ‘Mooching around El Raval’, a bit of research on Google made me realise we had missed half of it (the seedier bottom end – ha, ha!)  ’Furness abbey and surroundings’ was based on a description I wrote in my holiday diary at the time. I also referenced Bradshaw’s guide and felt pleased at how my writing ability was developing. 
I managed short periods out of bed and a small amount of housework but nothing too strenuous. I was careful to stop and rest when I felt too tired or got headaches.  Whilst putting some recycling out, I couldn’t believe how warm it was for the end of October and tried not to get too upset that I was unable to be out enjoying it.

Emoticon art
As it was half-term, my partner was home earlier than normal and helped with cooking, shopping and cleaning.  On Monday evening, we texted each other while he was stuck on a slow train.  We had a laugh at his ability to make art even with the ‘tiny dot pictures’ as he called emoticons.

By Wednesday I thought I was on the mend again.  I got up and finished cleaning the kitchen which took ages longer than normal and knackered me.  But after a short rest, I felt up to venturing off the street to the local supermarket.  

I saw our good friend who used to live on the street below, with her young son.  She promised to text about visiting her new house soon.
That evening I had a relapse and felt really crap on Thursday.  There was a flood siren test and my partner said “it’s like the war” and then asked “what if we activated all the old nuclear sirens still lying about?  Everyone our age would think it was world war 3, and all the young people would be like, ‘what’s that shit?’”
I felt depressed at my feebleness dragging out.  I tried to stay positive but it was very hard and I kept wanting to cry.  I decided to do nothing at all apart from rest and meditate.  But I became increasingly sceptical about the efficacy of ‘mindfulness’.  The ‘connected’ meditation encouraged me to reach out to everyone, even people I didn’t like.  I found this a tall order; I did not want right-wing aresholes to be bathed in kindliness at all!
 In the evening we had planned to go out in Leeds as I had a discount card for a restaurant.  My partner decided to go to Trinity for a bit of shopping instead and texted to say it was like a mad disco hell.  I guess not having kids made us somewhat immune to the madness of Halloween.  I was glad I hadn’t been able to go.
That night, I got bad tummy ache and by Friday morning it really hurt.  My partner was ‘working at home’ and I made an effort to go with him for the weekly shopping.  It was so weirdly warm and sunny again – like summer.  (The warmest Halloween on record as we got told about a million times!)
In the afternoon I went for aromatherapy.  I mentioned my tummy blockage and she performed some reflexology on me as well as the usual massage to try and help.  Then I went back to bed, got up again in the evening for trick or treaters.  Our only callers were two small boys leaving us with a stack of Haribos.
I could hardly eat at dinner time and after one glass of wine I started to fall asleep.  I went to bed at 9.30 and slept until 7.30 a.m. albeit in one-hour snatches.
So, I ended October with a catalogue of woes.  I started to wonder if all my efforts to stay active and positive over the last couple of years were a waste of time.  I embarked on a new tactic – to stay in bed until I really felt like getting up.  Would it work?

Footnotes

 
ii EHS – Exploding Head Syndrome

iii Twitter conversation – getting a record 7 retweets, 9 ‘favourited’ and 7 new followers!
Me: @indiaknight:  “I have found being a woman over 50 quite straight-forward without needing a stupid book!”
Tracy Thorn: (yes, that one!) @Me and @indiaknight:”I quite agree. I don't need a stupid book either. Honestly I wish writers would just stop. With their stupid books.”
Me:”Yeah, like 'how to dress'. About, like wearing clothes?!”
James Ramsden: @me and indiaknight: Top of Form “I bet you bloody hated @Nigella_Lawson's How To Eat!”
Me: Yes, but amusing that after thousands of years some posh woman tells us we have been doing it wrong!”
Dame Snarkula: @jteramsden @me, @indiaknight, @Nigella_Lawson Almost choked on my coffee Haha!
Elspeth Potts: You're very lucky then! I need all the help I can get! :D!”
Me:”How have you even managed to live up to now then?!”
Elspeth Potts:”In a box: D!”